Module summary

Conclusion

I felt cheated. This wasn’t what we had planned for our lives together. Our grown daughter was ripped off, and her (eagerly hoped for) baby was cheated of its grandfather.

Some of the key points covered in this module include

  • When a diagnosis is first received, the patient and everyone in the family are likely to experience all kinds of thoughts and feelings. Everyone’s experience will be unique.
  • Strong emotions that families may experience include fear, anxiety, anger, guilt, hope, guilt, and grief.
  • Some of the different reactions family members experience include disbelief, denial, and a need for closeness and intimacy.
  • Probably one of the biggest sources of anxiety for families is the sense of uncertainty, often related to how the illness will progress and when death might occur. Anxiety can impact different people in different ways, even members of the same family.
  • Living with a life-limiting illness may bring many surges of anger for the patient, the caregiver, and the family. However, the anger you feel may be a secondary emotion. You may actually be feeling something else, but it may come out as anger.
  • Current roles held by different family members may shift and change when there is a life-limiting diagnosis.
  • Some ways families can deal with their emotions include talking to someone, focusing on the things they can control, staying flexible as a family, and accepting the changes.